Founded in March 2014, #GetYourBellyOut CIC provides support for a global community of people affected by Crohn’s Disease or Ulcerative Colitis.
As the name suggests, we encourage people to take a photograph of their belly and post it to social media. The idea is to showcase that whether you have scars, an ostomy or no visible signs at all we’re united in the fight against Inflammatory Bowel Disease! GetYourBellyOut Community Interest Company is a patient lead not-for-profit organisation that’s reliant on generous donations from our global community to safeguard, sustain and power the work that we do both now and in the future. We are working every day to provide support for people with Crohn’s Disease or Ulcerative Colitis by …
Providing a safe support system
We work incredibly hard on the important things, such as building people’s confidence, kindling new friendships, organising social events, reducing isolation and providing support 365 days a year. We offer access to our online support group with like-minded people and the ability to contact us through our website for private assistance via email or our Facebook page.
Increasing awareness and understanding
Our ground-breaking approach has enabled us to raise awareness of Inflammatory Bowel Disease on a large scale through global media coverage and features in numerous mini documentaries (Such as talking about IBD on S4C or a BBC feature about GetYourBellyOut). We’ve featured our inspiring ‘bellies’ in a charity calendar, taken them on a tour of an ostomy factory as well as included them in a number of articles and awareness videos. We encourage body confidence, attend events and enjoy public speaking to discuss the topic of IBD and the impact GetYourBellyOut has had.
Hosting fundraising and social events
Our local events, organised in conjunction with our supporters and held to encourage friendships and reduce the feeling of isolation. We’ve held five national celebratory events with hundreds in attendance to bring a wide variety of people and companies together for a unique opportunity to get to know one another. Our events help people to better understand, accept and discuss their journeys with Crohn’s Disease or Ulcerative Colitis.
Influencing practise and policy
We’ve been busy campaigning on issues in Parliament such as the IBD standards, the Welsh Assembly to launch ‘My Crohn’s and Colitis Care’ to MP’s as well as assisting Crohn’s and Colitis UK with their ‘More IBD Nurses’ MP letter campaign, ‘Not every disability is visible’ campaign and the creation of the ‘Can’t Wait’ card information packs.
GetYourBellyOut have influenced governments on their choice of advertising campaigns, hosted a pioneering ‘virtual ostomy care clinic’ ft Clinimed and provided feedback for NICE (National institute for Health and Care Excellence) on the use of Biologics. As area where we thrive and have a large impact is giving presentations to NHS staff, pharmaceutical and ostomy companies about the impact #GetYourBellyOut has had on the world and sharing real life accounts of IBD.
GetYourBellyOut encourages our community to get involved in survey participation to express their opinions. We help to highlight research projects, canvas opinions, provide feedback on product prototypes and aid students with their PhD’s.
Over the years we have received a phenomenal response from the IBD community who are eager to share their story with the world, many for the very first time.
‘Two years ago, thanks to #GetYourBellyOut and all of their amazing inspiring warriors I FINALLY told everyone my 14 year old secret! I’ll forever be grateful to this campaign and the amazing people I’ve met through it, who gave me the confidence to do something I thought I’d never in my life even think of doing. So thank you from the bottom of my heart’ – #GetYourBellyOut supporter Francesca.