Every 22 minutes, someone in the UK is diagnosed with Crohn’s Disease or Ulcerative Colitis…
We are here to help! #GetYourBellyOut is an award-winning, patient-led, charitable organisation providing support, education and advocacy to a global community of 60,000 people.
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Founded in March 2014, GetYourBellyOut’s initial aim was to encourage people to take a photograph of their bellies and post it to social media. The idea was to showcase that whether you have scars, an ostomy, or no visible signs at all, we’re united in our fight against Inflammatory Bowel Disease!
GetYourBellyOut’s mission is to now become the world’s leading digital and physical destination for people affected by Inflammatory Bowel Disease.
91% of members said they now feel less lonely or isolated
63% feel more informed and understand their illness better
99% have seen a benefit from being part of GetYourBellyOut’s community
For over a decade, GetYourBellyOut has been a lifeline for people affected by Inflammatory Bowel Disease, helping thousands of patients and families around the world access support, education, and community when they need it most.
Every day, people turn to us following a new diagnosis, during a flare, after surgery, or when they simply need reassurance from someone who understands. We provide trusted information, campaign for better care, and bring people together so they don’t feel alone.
As demand for our services continues to grow, so does the need for support. Every donation helps us reach more people, create new resources, deliver impactful projects, and ensure that help is there for the next person who needs it.
Whilst some people choose to support us regularly, others do so as and when they can. Every contribution, no matter the size, helps keep our work alive and ensures we can continue supporting the IBD community for years to come 
‘This organization is a lifeline for so many of us! The support and awareness raised is incredible.’
‘GetYourBellyOut changed my life. After many years of hiding that I suffered, I now won’t shut up! IBD isn’t easy to live with day to day, but having support and friendship has made it a lot easier. I’m no longer ashamed!’Â
‘I want to say thank you to everyone for the support, love, and friendship found within this community. My darkest days have been brighter because of your presence.’
‘Two years ago, thanks to #GetYourBellyOut and all of their amazing inspiring warriors I FINALLY told everyone my 14-year-old secret! I’ll forever be grateful to this organization and the amazing people I’ve met through it, who gave me the confidence to do something I thought I’d never in my life even think of doing. So thank you from the bottom of my heart.’
GetYourBellyOut created a mini documentary, showcasing the lived experiences of Inflammatory Bowel Disease to raise awareness and improve people’s understanding of these chronic illnesses. In the film, Keith, James, Yvonne & Victoria speak openly about the challenges they’ve faced and how a community has helped them on their journey…
At GetYourBellyOut, we’ve spent over a decade listening to the lived experiences of people with IBD. We know that beyond the physical and emotional toll, prescription charges add real financial pressure for many in our community.
That’s why we’re supporting Tillotts’ A Chronic Cost campaign, highlighting the impact prescription costs have on people with IBD in England.
Please take a few minutes to complete the short survey to share your experiences. Every response helps strengthen the call for change.
On the 19th of May, the world will come together to raise awareness of Inflammatory Bowel Disease (Crohn’s Disease, Ulcerative Colitis and Microscopic Colitis).
This important date in the calendar is a great opportunity for us all to promote acceptance, so help us mark this special day by proudly wearing your t-shirt, displaying some bunting and hosting a fundraising event.
