We want to encourage some of the brightest minds to take up the challenge of exploring the fascinating world of Inflammatory Bowel Disease and encourage our community to get involved in survey participation to express their views, provide feedback on products, and canvas opinions.
Patient perspectives and lived experiences are an integral part of any research. Whilst It is encouraging to see more research now consulting patients, we are keen to ensure these wonderful individuals are shown respect, and kindness during the process and a carefully considered approach is adopted to ensure participants feel supported throughout.
We enjoy attending research days and assisting students with their studies.Â
Poppy, a PhD student from Manchester University has been shadowing GetYourBellyOut’s work for several years. In that time she has received valuable advice on the best approach and has learnt a great deal about how researchers can make small but impactful changes which make the process more comfortable and enjoyable for both parties.Â
We especially encourage you to read her first paper from her PhD published in @socscimed. Taking a care-full and crip approach, she discusses the importance of being flexible in research with Disabled and chronically ill people…
If you would like to contact Poppy about her research into the ‘everyday lives of young people living with an ostomy’ or her experiences working with GetYourBellyOut you can do so here…
Please know we are on hand, as patient experts, to review wording and sentiment. We can help you with processes and techniques to drive participation numbers and can advise you on participant onboarding. We too are on hand to provide guidance on dissemination of findings. GetYourBellyOut likes to have creative involvement with the research projects we choose to support and only ask for recognition in return for our hard work – we don’t typically advertise research we haven’t been asked to support from the very start (nobody likes feeling like an afterthought). If you would like to include GetYourBellyOut in your research, contact us here.
Over the last decade, we have helped researchers explore various different topics related to Inflammatory Bowel Disease. Some of the themes we have tackled and universities we have supported have been…
Nottingham University – Social media & IBD
This study seeks to understand the appetite for patients to learn more about their digital footprints (information privacy) when obtaining support from a digital community.
Researcher – Kate O’Leary
Tap to download the findings (coming soon)
Kings College London – Fistulas & Crohn’s Disease
This research was to learn about patient experiences of living with a perianal fistula.
Researcher’s details coming soon
Tap to download the findings (coming soon)
Researchers contact details coming soon
Leeds Beckett University – Psychology, Identity & IBD Management
This research is hoping to better understand the impact Crohn’s Disease and Ulcerative Colitis has on people’s identity and mental health.
Researcher – Louisa Peters
Tap to download the findings
University of Roehampton – The Impact of Ulcerative-Colitis Surgery on Psychological and Cognitive Factors in Individuals with Ileostomies and Ileal Pouch Anal Anastomosis
The aim of this research was to examine the differences in psychological (depression, anxiety, and body image) and cognitive factors (attentional control and metacognitions), coping strategies, help-seeking behaviours, and attitudes towards therapy in individuals with ileostomies (ILEOs) and ileal pouch anal anastomosis (IPAAs)
Researcher – Zeina Bushnaq
Tap to download the findings
University of Sheffield – Perceptions of sleep in IBD and the acceptability of sleep interventions in routine care: A qualitative study
This qualitative study found that people with IBD perceive their sleep to be an integral part of living with IBD, would like more sleep support than is currently available, and find interventions for sleep broadly acceptable.Â
Researcher – Alex Scott
Tap to download the findings
The Royal Holloway University of London – Understanding the impact IBD has on how we think about our futures.
This research study aims to understand the impact of how we think about our personal futures and how this links with our health and mood.
Researcher – Justyna Kubowicz
Trainee Clinical Psychologist
Tap to download the findings
University of Manchester – Everyday lives of young people living with an ostomy
The research investigates how young people living with an ostomy experience spaces (home, work, education, social), and relationships (friends, family, partners, professional), as well as exploring themes of invisibility, identity, and community.
Researcher – Poppy Budworth
PhD Student
Tap to download the findings (coming soon)
Perianal Abscess and Faecal Calprotectin in Preclinical Crohn’s disease with Microbiome ANalysis (PACCMAN)
An observational study of Perianal Abscess and Faecal Calprotectin as a Marker in Identifying Preclinical Crohn’s Disease and Terminal Ileal Microbiome Analysis to further understand the Aetiopathogenisis of Crohn’s Disease. (Study of patients with abscesses on their bottom as a marker to pick up Crohn’s before it has attacked and damaged the bowel)
Researcher – Anil Thomas GeorgeÂ
Consultant Colorectal Surgeon, Sandwell and City Hospital NHS Trust
Tap to download the findings (coming soon)
Swansea University – Experiences of IBD diagnosis and care since Covid-19Â
The research investigates people’s experiences of IBD diagnosis post Covid-19 and the support and impact on mental health since March 2020.
Researcher – Rhiannon Davies
MSc Clinical Psychology and Mental Health Student
Tap to download the findings (coming soon)
University of Chichester – Living with a stoma: A qualitative exploration of positively reframing sense of self
This research seeks to explore the experiences of ostomates who have adapted well since their stoma surgery and determine what factors enabled them to do so.
Researcher – Sara Campbell
Tap to download the findings (coming soon)
Liverpool John Moores University – Inflammatory Bowel Disease (IBD), School and Me
An Exploration of the Emotional, Embodied and Affective Experiences of Everyday School Life for Children with Crohn’s Disease and Ulcerative Colitis.
Researcher – Catherine Wilkinson
Reader in Childhood and Youth Studies
Tap to download the findings (coming soon)
University Placeholder
Feature your research here
Tap to download the findings (coming soon)
Contact name – Contact the researcher